Janice was diagnosed at birth with a spontaneous mutation of Pachyonychia Congenita.
Janice married David Schwartz in 1993 and she is the reason that PC Project was organized. Dave and Jan have three sons, Sam, Nate and Spencer; and one daughter, Rebecca.
Janice serves as PC Project Patient Advocate. She wrote the monthly “Life With PC” from 2003 to 2012. Here is her post in September 2003 when we first began to organize PC Project. Click Here to access the Living With PC Archive.
Pachyonychia Congenita? (PC) Thirty-five years it’s been a part of my life and I can still barely spell it! How excited I am about this Pachyonychia Project! This is even more exciting than the introduction of the World Wide Web, when I could connect for the first time with other people who had PC, and realize not only was I not alone, but there were others who knew exactly what an infected nail feels like, or understand the difficulty and pain of walking with blisters on the soles of your feet. Now, here we are, embarking on a project we hope is instrumental in finding THE CURE FOR PC. Even if it takes 20 years, what’s 20 years when generations can be helped?