My Story:

Joshua McPeak

An active 8 year old, Joshua is learning how to avoid fingernail infections

It took 2 years before we found out that I had PC and were introduced to the PC Project. We have learned a lot about PC and we have even had to teach my doctors about it since they always think it is something else.

I don’t let the PC slow me down.  I’m very active and last summer I even joined the cross country team.

My fingernails and toenails grow really big and I have to keep them trimmed. My dad uses a Dremel to file them down. I need to be careful with my fingernails since they become infected, cause excruciating pain, and then the nail falls off.

NOTE FROM PC PROJECT: Children have more nail infections than adults because their hands go everywhere. Some tips are in the Caring for PC: Nails in the Video and Presentation Archive.

PCers have a great attitude

It is "do all you can, as long as you can despite the pain!" We definitely cheer that approach. However, stories from young PCers (those age 12 and under) who have mild plantar pain and few cysts or other PC symptoms may seem to show you can just be 'tougher than PC.'  That approach is not the most effective, since when full grown, PC pain will increase to the point that being tough isn't enough. It's important that youth develop and find 'off the feet' activities and skills. Most PCers are very, very high achievers and find a way to excel although PC pain has a definite impact on quality of life. That's a whole story in itself!

Jan's Corner

The "Living With PC: Jan's Corner" posts from 2003-2012 were very popular and are now accessible in the Living With PC Archive. You may read individual topics or use the free download link for the complete collection of Jan's Corner in E-book formant. Also, these posts are indexed and available on the PC Wiki so you can search for a specific word or topic. You may also Connect With Us to order a printed bound copy of the blog.
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC