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PC Awareness Around the World

May 8, 2016 by Pachyonychia

PC Awareness Around the World – Each Year in June

2013awarenesslogo

It is very important that every PC patient and family join with us to raise funds and raise awareness of PC in some way in their own communities for this annual event. Click for easy 1-2-3- How To Get Started Steps and highlights of some events (as well as an Awareness Past Event Archive).

It takes millions of dollars to carry out clinical trials, plus costs for research and patient services. Both the percentage of patients in the IPCRR and the number helping in fundraising efforts greatly matter to grant funding and sponsors.

PC Awareness Events

We hope to have at least 50 PC Awareness events around the world in June. Plan your event now – large or small – and help us get these listed and publicized.

Plan your event now and let us know about it — if you need help, just email us.

Filed Under: News

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

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