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PC/pEDD Medical Provider Directory

May 21, 2026

With patients across the United States and in over 60 countries, PC Project is often asked by patients or caregivers if we know of a doctor near them who knows even a little about their rare skin disorder.

Physicians, we invite you to add your name to our Medical Provider Directory to connect patients worldwide with heathcare professionals at least somewhat experienced in PC and related painful palmoplantar Epidermal Differentiation Disorders (pEDDs).

Access to knowledgeable doctors can make a meaningful difference for people living with rare diseases like ours – and prevent them from useless or harmful treatments.

If you are a medical provider, please complete our short Provider Directory Information Form which will include the information a patient will need to make an appointment with you.

If you are a PC/pEDD patient and have a dermatologist, podiatrist, or other type of physician that tries to understand your condition, please recommend your doctor here.

Thank you for helping us create this important and powerful resource!

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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