Pachyonychia Congenita Project Europe is a Scottish Charitable Incorporated Organisation (SCIO) number SC046480.
To better serve patients outside North and South America, we have obtained formal status as a public charity in the UK. This will allow those in the UK to take advantage of Gift Aid which adds an extra 25% to each donation made to a recognized charity by a UK citizen.
Although recent world events (i.e. Brexit) have changed the EU, we hope that this PC Project Europe will be an effective means of extending our support to all patients with PC in the UK and EU and others outside the USA throughout the world.
Beginning in 2016, we are developing a PC Advocate program and have invited representatives from many countries to participate in training and assist in identifying patients, translating materials, and representing PC Project in their countries. The first eight advocates from the USA are actively serving. PC Advocates from Finland, France, Germany, India, Italy, Spain, Sweden, and UK (Wales and England) have been invited to participate and training will begin shortly. If you are interested, please email info@pachyonychia.org and mention you’d like to be a PC Advocate.
Be sure to fully use all of the valuable information available on this PC Project website. There are dozens of pages and links and images and hints and guidance. Let us know if you have any questions. In the future, we hope to have a PC Project page for each country on the website with basic PC information in the country’s language.
PC Project Europe Board of Trustees
Philip Gard
Board Chair
PCer
Tom Baker
Trustee
PCer and parent of PCer
Julie Peconi
Trustee, Secretary
Parent and wife of PCers
Janice Schwartz
Trustee
PCer and parent of PCers
