Pachyonychia Congenita Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

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PC Project Europe

Pachyonychia Congenita Project Europe is a Scottish Charitable Incorporated Organisation (SCIO), Number SC046480.

To better serve patients in European countries, we have obtained formal status as a public charity in the UK. This will allow those in the UK to take advantage of Gift Aid which adds an extra 25% to each donation made to a recognized charity by a UK citizen.

DOnate through JustGiving

Although recent world events (i.e. Brexit) have changed the EU, PC Project Europe is an effective means of extending our support to all patients with PC in Europe and throughout the world.

In 2016, we developed the PC Advocate Program and invited representatives from various countries to participate in training and to assist in identifying patients, translating materials, and representing PC Project in their countries. PC Advocates from Finland, France, Germany, India, Italy, Spain, Sweden, and UK (Wales and England) were trained and have been serving patients in their various countries.

If you are interested in becoming a PC Advocate in your country, please email info@pachyonychia.org.

Regardless of what country you live in, be sure to fully use all of the valuable information available on this PC Project website. There are dozens of pages that include links, images, and guidance about living with PC and the important work accomplished by PC Project Europe and PC Project overall.

PC Project Europe Board of Trustees

Philip Gard

Board Chair

PCer

    Claudia Avella-Garcia

    Trustee

    Parent of PCer

      Tom Baker

      Trustee

      PCer and parent of PCer

        Julie Peconi

        Trustee, Secretary

        Parent and wife of PCers

          Janice Schwartz

          Trustee

          PCer and parent of PCers

            For all United Kingdom Shoppers

            Please use Give as You Live. 

            To date, UK shoppers have raised £378.65 for PC just by using Give as You Live and shopping online! And this is only from five users!!! Let’s get this number growing!

            How to register:

            1. Go to the Website : https://www.giveasyoulive.com/ or download the Give as You Live app.
            2. Click on the Sign up button, enter your name, email address and chosen password.
            3. Under choose a charity to support, find Pachyonychia Congenita Project Europe (Scotland)
            4. Start shopping! Search for the store you want to visit either through the app or on the Give as you Live website. Once you’ve found your store, just follow their link to their website and Give as you Live do the rest!  This ensures a donation is made to the PC Project based on your purchases.

            Tips if you are on a desktop or laptop:

            If you are on your computer (and not the app) you can do this even easier.

            To do this, go to https://www.giveasyoulive.com/pages/donation-reminder, then click ‘Add to Chrome’.

            This opens another page, and you again need to click ‘Add to Chrome’ where a box pops up with where you should click ‘Add Extension’.

            A little heart representing Give as You Live then appears on the toolbar and you can use this to search for the website you require so that you will automatically make donations to PC Project.

            Tips using the App:

            Download the app, and whenever you want to make purchases online search for the shop you want. Donations will automatically then be made to PC Project.  Please note that this only works for website purchases, not in app purchases.*

            *For example, if you go to the ebay website you can raise up to 0.50% but if you use the ebay app this won’t work. Therefore if you use the Give as you Live app on your phone just open up the website you want to visit to ensure that the visit is tracked.  Any questions please just ask! *

            For more information: https://www.giveasyoulive.com/how-it-works