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Pachyonychia Congenita Project

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PC Project Newsletter Archives

PC Project Newsletter Sept. 2026

Pachyonychia
September 18, 2026

Sept. 2026 | Vol 21, No. 6 In This Issue: Mission Progress: A Message from the CEO, Updated Mission Statement Research & Studies: ESDR, PC Project Grants, Clinical Trials Update Community & Events: Connection Circle for Parents, London Patient Support Meeting Recap, New to PC Project Orientation With Appreciation: Because You Stepped Up Last week,…

Continue Reading PC Project Newsletter Sept. 2026

PC Project Newsletter August 2026

Pachyonychia
September 15, 2026

Aug 2026 | Vol 21, No. 5 In This Issue: Community & Events: Connection Circles, Back to School, Town Hall Recap, London Patient Support Meeting Research & Studies: PC Project Grants, ESDR, Publication Highlights Get Involved: Peer-to-Peer Campaign, Make-a-Will Month With Appreciation: Thank You, Jim! Introducing PC Project Connection Circles PC Project is excited to…

Continue Reading PC Project Newsletter August 2026

PC Newsletter July 2026

Pachyonychia
July 9, 2026

July 2026 | Vol 21, No. 4 In This Issue: Mission Progress: Expanding Our Reach, New PC Project Staff Patient Voices: Still Fighting, Generations of Strength Research & Studies: BAD Conference, World Congress on Rare Diseases, Clinical Trials Update, A Pioneer in Vietnam Community & Events: Town Hall Zoom Meeting, London Patient Support Meeting, PC…

Continue Reading PC Newsletter July 2026

PC Newsletter May 2026

Pachyonychia
May 27, 2026

May 2026 | Vol 21, No. 3 In this Issue: Mission Progress: Advancing Research, Building Connections, Creating Hope Patient Voices: Ela’s Story of Growing Up With PC Research & Studies: Clinical Trial Update, Latest Research News Community & Events: Important London Patient Meeting Deadlines, Key Scientific & Medical Conferences, Patient Panel Get Involved: Firewalk, Advocates…

Continue Reading PC Newsletter May 2026

PC Newsletter Mar 2026

Pachyonychia
March 23, 2026

March 2026 | Vol 21, No. 2 In this Issue: Mission Progress: Behind the Scenes Patient Voices: Eunice & Aurora Research & Studies: Footwear Survey, Publications, Patient Registry Community & Events: EDD Symposium, London Patient Meeting Get Involved: Fundraisers, Represent PC Project on the Hill With Gratitude: Remembering Cherished People Because of You: Progress Behind…

Continue Reading PC Newsletter Mar 2026

PC Newsletter Jan 2026

Pachyonychia
January 15, 2026

PC Project Newsletter Vol 21, No. 1Jan 2026 In this Issue: State of the Organization: A Year of Momentum & What’s Ahead Patient Voices: Niam’s Essay & James Poem Research & Studies: Clinical Trial Update, Grants, Publications, PC Registry Community & Events: EDD Scientific Symposium & London Patient Meeting Getting Involved: Need Care Videos &…

Continue Reading PC Newsletter Jan 2026

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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