#PCunselfie #SupportPCProject #GivingTuesday

Pachyonychia Congenita (PC) is an ultra-rare genetic autosomal dominant skin disorder.  This disorder does not affect lifespan, but almost all PC patients experience constant pain.  There is currently no effective, approved medical treatment or cure for PC.

PC Project is leading the way to help raise awareness for this disease, build our powerful registry for research and clinical trials, help PC patients navigate life with this terrible condition, and keep fighting for a cure.

This Giving Tuesday, we’re asking our community to do three things:

  1. Create an unselfie telling your friends why you support us. An unselfie is just like a selfie, but with a generous twist. Take a photo of yourself holding a sign that tells your followers who you’re supporting for Giving Tuesday and why. Click to download and print your sign: #PCunselfie sign
  2. Post your unselfie and messages to Instagram, Facebook and Twitter with the hashtag #PCunselfie #SupportPCProject.

  3. Make your contribution to PC Project and select cause Giving Tuesday, and then ask friends and family to join you with a donation this Giving Tuesday.

(If you’re not on social media, you can still e-mail us your unselfie and message at: info@pachyonychia.org)

PC Project is leading the way for a cure. Medical research for orphan diseases is expensive and profit potential for drug companies is limited. PC Project fights 24/7/365 to make sure Pachyonychia Congenita – and each person who lives with the pain and stigma of this disease – never falls through the cracks.

Thank you for your support!

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
 
sb_featlink_patientstories
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC