• Skip to main content
  • Skip to footer
VIEW MENUMENU
  • Pachyonychia Congenita
        • What Is Pachyonychia Congenita?
          • Could I Have PC?
          • Getting Diagnosed
          • Genetics
          • Image Library
          • Glossary
          • Brochures
          • Patient Stories
        • Patient Registry (IPCRR)
          • Patient Registry Data
        • Understanding my Genetic Testing Results
          • K6a-pEDD-PC
          • K6b-pEDD-PC
          • K6c-pEDD-PC
          • K16-pEDD-PC
          • K17-pEDD-PC
          • Non-PC Palmoplantar EDDs
        • Managing and Caring For PC
          • Tips and Tools
          • Living With PC
          • PC & Children
          • Working With Medical Professionals
          • Family & Friends: How To Help
          • Video Library
  • For Professionals
        • For Professionals
          • International PC Consortium
          • Pharmaceutical Partners
          • Refer a Patient
          • Patient Registry (IPCRR)
            • Patient Registry Data
            • Non-PC Palmoplantar EDDs
          • Advocacy Partners
        • PC Research
          • Apply for a Grant
          • Awarded Grants
          • Published Research Articles
          • Clinical Trials
        • Patient Voices
          • Quality of Life
          • Patient Stories
          • Patient-Focused Drug Development Meeting
  • Ways To Give
        • Ways You Can Give
          • Donate
          • Donate Just Giving UK
          • Steady Relief Circle
          • Donor-Advised Fund
          • Giving Stock
          • Legacy Society
        • Raise Awareness
          • How You Can Help
          • Fundraising Ideas
          • Share Your Story
          • PC Advocates
          • Volunteer
        • 2025 Donor Gratitude Wall
  • News & Events
        • News
          • Current Newsletter
          • Newsletter Archives
          • Sign up for our Newsletter
        • Events
          • Patient Support Meetings
          • IPCC Meetings
          • Video Library
  • About Us
        • About PC Project
        • Medical and Scientific Advisory Board
        • Financial & Legal Information
        • Contact Us

#PCunselfie #SupportPCProject #GivingTuesday

October 12, 2021

An unselfie is just like a selfie, but with a generous twist. Take a photo of yourself holding a sign that tells your followers who you’re supporting for Giving Tuesday and why. I #SupportPCProject because….

Pachyonychia Congenita (PC) is an ultra-rare genetic autosomal dominant skin disorder.  This disorder does not affect lifespan, but almost all PC patients experience constant pain.  There is currently no effective, approved medical treatment or cure for PC.

PC Project is leading the way to help raise awareness for this disease, build our powerful registry for research and clinical trials, help PC patients navigate life with this terrible condition, and keep fighting for a cure.

This Giving Tuesday, we’re asking our community to do three things:

  1. Create an unselfie telling your friends why you support us. An unselfie is just like a selfie, but with a generous twist. Take a photo of yourself holding a sign that tells your followers who you’re supporting for Giving Tuesday and why. Click to download and print your sign: #PCunselfie sign
  2. Post your unselfie and messages to Instagram, Facebook and Twitter with the hashtag #PCunselfie #SupportPCProject.
  3. Make your contribution to PC Project and select cause Giving Tuesday, and then ask friends and family to join you with a donation this Giving Tuesday.

(If you’re not on social media, you can still e-mail us your unselfie and message at: info@pachyonychia.org)

PC Project is leading the way for a cure. Medical research for orphan diseases is expensive and profit potential for drug companies is limited. PC Project fights 24/7/365 to make sure Pachyonychia Congenita – and each person who lives with the pain and stigma of this disease – never falls through the cracks.

Thank you for your support!

Give Now

Footer

PC Project logo in white
PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube

Sign up for our Newsletter

Loading

Support PC Project

There are many ways you can help improve the lives of those who suffer from Pachyonychia Congenita.

Learn More
  • Contact Us
  • About Us
  • Donate
  • Patient Registry