Thank you to the Pediatric Dermatology Research Alliance team for giving patient organizations like ours a voice and an excellent experience at PeDRA 2024 conference in Arizona. We exhibited, learned, and made new and important connections.
Our goal was for every professional in attendance to know about PC (including the early signs of PC and how it affects children) and the work PC Project does to support pediatric dermatologists and researchers. And we think/hope we did it! We’d like patients to get diagnosed a lot sooner in life and by educating pediatric dermatologists, we hope so many of our PCers won’t have to wait decades to get answers.
Special thanks to PeDRA for the travel scholarships to help offset the costs for us to attend.
After the conference, PC Project met with some of our local PC family members for lunch. We can’t help ourselves. When we travel for PC Project, if possible, we always try and connect with local patients in our registry and as usually happens, the bonds formed quickly. At these gatherings, no one feels like they have to hide the fact that they have PC. We were especially touched at the interactions and shared advice between those who have lived longer with PC and those who are earlier on their journey. There’s a reason our logo includes a heart. The love and the kindness flow freely in our community, even among people meeting for the first time.
Download a copy of the postcard for pediatric dermatologists.
