Sept. 2026 | Vol 21, No. 6 In This Issue: Last week, I received a call from a person to our community - a grown man with a painful palmoplantar disorder who, with the help of AI, found PC Project. The call was very emotional as his voice broke at times because he was finally talking with … [Read more...] about PC Project Newsletter Sept. 2026
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PC Project Newsletter August 2026
Aug 2026 | Vol 21, No. 5 In This Issue: Introducing PC Project Connection Circles PC Project is excited to announce our newest community program, Connection Circles. Connection Circles are virtual peer-led, open discussion sessions where patients come together in a warm, supportive … [Read more...] about PC Project Newsletter August 2026
TAT-pEDD (palmoplantar Epidermal Differentiation Disorder)
Also known as tyrosinaemia type II (Richner-Hanhart syndrome) TAT-pEDD is a rare genetic skin condition that causes erosive keratoderma on the soles and, unusually, follows the finger dermatoglyphics (epidermal ridges that constitute … [Read more...] about TAT-pEDD (palmoplantar Epidermal Differentiation Disorder)
New to PC Project?
Join PC Project CEO Janice Schwartz on Zoom for an orientation where you'll learn about the resources, programs, and support available to you through PC Project. It's also an opportunity to ask questions, meet with somebody who understands the PC/pEDD journey, and discover how to stay connected with … [Read more...] about New to PC Project?
Connection Circle: Parents
Join us Saturday, September 19th for parents helping parents. Raising a child with PC and other pEDDs comes with unique challenges, and no one understands that journey better than the parents. PC Project's first Connection Circle, especially for parents, will be held … [Read more...] about Connection Circle: Parents
PC Project Connection Circles
Introducing PC Project's New Way to Unite and Serve our Community PC Project is excited to announce our newest community program, Connection Circles. Connection Circles are peer-led, open discussion sessions where patients come together in a warm, supportive environment to connect with others … [Read more...] about PC Project Connection Circles
SLURP1-pEDD
Also known as Mal de Meleda SLURP1-pEDD is a rare genetic skin condition that causes palmoplantar keratoderma (PPK) and, in some patients, progressive symmetric erythrokeratoderma (PSEK). Affected skin can appear whitish and diffusely thickened on the palms and soles, sometimes … [Read more...] about SLURP1-pEDD
PERP-pEDD (palmoplantar Epidermal Differentiation Disorder)
Also known as Olmsted syndrome PERP-pEDD is a rare genetic skin condition that causes extremely painful, thickened skin on the palms and soles, along with scaly patches around the mouth, nose, and eyes and in skin folds such as the armpits, breast, and groin.1 It is caused by … [Read more...] about PERP-pEDD (palmoplantar Epidermal Differentiation Disorder)
