Raise PC Awareness Around the World
We are rare, but together we are stronger and together we can make a difference!
June is PC Awareness Month and we invite you to join from your part of the world to raise awareness about PC.
Why is PC Awareness So Important?
There are many benefits of community awareness of PC. We need to raise millions of dollars for research. This does not happen without first building a solid community both in the medical/scientific world and also in the public area. Patients are the most effective in the public area of their own neighborhood, school, and community. PC Project has been effective in producing high-quality, peer-reviewed research articles which can be easily shared with professionals.
These awareness efforts and individual fundraising efforts make a real impact when applying for research grants or seeking sponsorship funding. Please be part of the PC community effort. Together we can succeed in raising funds and raising awareness of PC.
How Do I Get Started To Sponsor An Event?
IT’S EASY AS 1-2-3!
- Choose your event. We ask every PC patient family to hold an event on or near PC Awareness Month in June. This event can be a bake sale, a bike ride, a craft sale, a trunk/yard/garage sale, a dinner with friends, a talent show, a walk or run… or some other event that would be fun for you and friends to host. It can be LARGE or small and whether your project raises $1 or $100,000, you will be joining with other PCers around the world creating “PC Awareness Around The World.”
- Share your event with PC Project. Post about your event on social media and tag PC Project. The many events around the world (large and small) will enable us to meet the goal of public awareness for PC. Please send an email to email@example.com to tell us about your event and any details or photos you’d like to share.
- Report Your Success. When you forward the funds raised at your event, please also send a report and photos to tell what you did. This will help others who may want to use your ideas in the future. Even if your event didn’t raise any funds, extending awareness of Pachyonychia Congenita is important for better funding, better care, and understanding.
Other Ways to Help Raise Awareness
Together we are raising funds and awareness for PC. Sponsoring an event in your local…
How You Can Help
With donations and service from PC patients, friends, and family around the world, we…
The PC Advocate Program was based on the premise that each PC patient has…
Share Your Story
Your story will inspire many. Thank you for sharing your experiences with us.
Much of our work is done through the kindness of volunteers. If you have…