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Pachyonychia Congenita Project

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Share Your Story

Your story will inspire others, raise awareness about PC, and empower you to let the world know we need treatments to combat the pain.

Thank you for sharing your experiences with us whether you have PC, another rare skin condition, or are a loved one of a patient.

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PC Stories

Although PC is a rare disorder, there are individuals and families around the world living with it. Their stories are touching and illustrate the complexities and effects of this condition.

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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