We need a quick video of you! The instructions are below.
STEP 1: FILM with your smart phone
- A) film horizontally
- B) film with a solid, plain or non distracting background
- C) film the upper chest to head
STEP 2: ANSWER one or two questions
- What’s the worst or hardest thing about having PC?
The worst thing about PC is…
- If there was a treatment for PC besides a cure, what would that treatment do?
A treatment for PC would…
(Stop the pain? Help you walk more? Let you play sports?)
- What do you wish you could do that you can’t do because of your PC?
If I didn’t have PC, I would…
STEP 3: UPLOAD
or email your video to pachyonychia@gmail.com
If you have any problems or questions, please contact PC Project info@pachyonychia.org
