Short Videos Needed

We need a quick video of you! The instructions are below.

STEP 1: FILM with your smart phone

  1. A) film horizontally
  2. B) film with a solid, plain or non distracting background
  3. C) film the upper chest to head

 

STEP 2: ANSWER one or two questions

  • What’s the worst or hardest thing about having PC?

The worst thing about PC is…

  • If there was a treatment for PC besides a cure,
    what would that treatment do?

A treatment for PC would…

(Stop the pain? Help you walk more? Let you play sports?)

  • What do you wish you could do that you can’t
    do because of your PC?

If I didn’t have PC, I would…

 

STEP 3: UPLOAD

https://goo.gl/vhedgc

or email your video to pachyonychia@gmail.com

If you have any problems or questions, please contact PC Project info@pachyonychia.org

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
 
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PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC