Imagine if every step hurt
For most people, taking a walk is something they never think twice about.
For someone living with Pachyonychia Congenita (PC) or another painful palmoplantar Epidermal Differentiation Disorder (pEDD), every step can be painful. Walking, standing, working, going to school, or simply getting through the day often comes with a cost.
That’s why we’re asking you to Step Up for PC.
Together, we’re raising $60,000 to fund research, provide free genetic testing, support patients and families, educate healthcare professionals, and raise awareness of these rare genetic skin disorders while bringing hope to individuals and families living with PC and related painful pEDDs.
Getting Started is Easy
1. Create your fundraising page.
Click “Become a Fundraiser” on our Givebutter campaign page (or JustGiving UK, for those in the UK to have Gift Aid option), then personalize your page with your story and photo. Returning Fundraisers: If you created a Givebutter fundraiser last year, please sign in to your existing Givebutter account before creating your new fundraising page.
2. Share why you care.
Tell your friends and family why you’re stepping up for PC. Personal stories inspire generosity.
3. Spread the word.
Share your page by email, text, or social media. Every share helps spread awareness and brings us closer to our goal.
Whether you create your own fundraiser, share our campaign, or make a donation, every action brings us one step closer to better treatments and ultimately, a cure.
▶ Watch Jack’s Story
Why We Step Up
Jack Padovano, Chair of PC Project’s Board of Directors, lives with PC.
He often explains life with PC by comparing it to having a bank account—not one filled with money, but one filled with steps.
“Every morning I wake up with a limited number of steps in that account. Every step I take is a withdrawal. If I walk too much, stand too long, or push myself too hard, I overdraw the account and pay for it with pain. Research has given me hope. That’s why I’m asking you to Step Up for PC.”
For people living with PC, every step matters.
That’s why every dollar raised through this campaign matters too.
Every Step Matters
Your support helps make life better for people living with PC and related pEDDs around the world.
❤️ Research
Funding research that brings us closer to better treatments and a cure.
🧬 Genetic Testing
Providing free genetic testing so families receive an accurate diagnosis and answers.
🤝 Patient Support
Connecting patients and families with trusted resources and a supportive global community.
👩⚕️ Physician Education
Equipping healthcare professionals to recognize and care for PC and related pEDDs.
🌍 Awareness & Advocacy
Raising awareness and giving patients and families a stronger voice worldwide.
About PC Project
PC Project is the only nonprofit organization in the world dedicated to improving the lives of people living with PC and related painful pEDDs. Through research, genetic testing, patient support, physician education, and advocacy, we’re working toward better treatments—and ultimately, a cure.
Join Us
Every donation.
Every fundraiser.
Every shared story.
Every step.
Together, we can improve lives today while building hope for tomorrow.
Step Up for PC.
