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Pachyonychia Congenita Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

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2025 Gratitude Wall

The Heart of PC Project

Every name on this wall represents someone who believes that no one should live with the daily pain of pachyonychia congenita and other conditions with palmoplantar keratoderma (PPK). Together, we are building a future where these terrible skin diseases no longer defines lives…where research leads to real relief, where support brings strength, and where every person can look forward to a life without pain.

Our community, from those offering comfort and care to those investing in breakthrough science, is the heartbeat of PC Project. Your generosity moves us closer to the day when we can truly say: the pain has ended forever.

$25,000 or more – Makes a future free from PC or other type of PPK possible

  • American Research Bureau
  • JAMS Family Foundation
  • Jack Padovano*
  • Private Donor
  • Mary Schwartz
  • Sorenson Legacy Foundation

$5,000-$24,999 – Powers transformative science and advocacy that move us closer to a world without pain

  • Amgen
  • BioMendics (2025 meeting sponsor)
  • Kamari Pharma (2025 meeting sponsor)
  • Marilyn Bramer
  • David Hansen
  • Private Donor*
  • Barbara Feinstein* & Aaron Klein*
  • Private Donor*

$1,000-$4,999 – Accelerates breakthroughs that reduce pain and improve quality of life

  • Private Donor*
  • Helaine Alessio*
  • Tom Baker*
  • Herbert Bolton
  • Private Donor
  • Lee Campbell
  • Marie Catanese
  • Olivia Castro Lay*
  • Rick Christie
  • James Cicconi
  • Sally Despain
  • Beth DiPrete
  • James Dozier
  • Hilary English
  • Nicholas & Joan Filoso
  • Philip Gard*
  • Thomas Gauld
  • GiftAid from UK JustGiving Donations
  • GlobalSkin
  • James Patrick Griffith Foundation
  • Mignon Groch
  • Carina Gronmeyer
  • Private Donor
  • Private Donor
  • Marcia Hough Baker*
  • Kasey Kuhlman
  • Harold and Catharina Lee
  • Robert Lindfors
  • Brian McCabe
  • Roseann and Michael McGrath
  • Private Donor*
  • Christopher Misiano
  • Barbara Novick (Jewish Community Fund)
  • Jessica Pacheco
  • Stephen Quinlan
  • Shirley Salzbrenner
  • Samuel Schwartz
  • Private Donor
  • Dean Sipe
  • Private Donor
  • Private Donor*
  • Gwen Tate
  • Private Donor
  • Brenda Viola
  • Douglas Wright
  • Anonymous Donations from Facebook and JustGivingUK

$250-$999 – Fuels research and care that help people live fuller, less painful lives

  • Private Donor*
  • Timothy Aluise
  • James Andrade*
  • Private Donor
  • Private Donor
  • Julianne Bennett*
  • Christine Block
  • Matthew Block*
  • Lawrence & Lynn Block
  • Private Donor
  • Gary & Terra Booms
  • Catherine Bradford
  • Albert Bravo
  • Kim Burr*
  • Teresa Burrell
  • Dawn Christensen
  • RK Christensen
  • Michael Christopher
  • Private Donor
  • Edward Churchill
  • Kate Ciafone
  • Lindsay Clark
  • Taylor Collier
  • Dan Combs
  • Private Donor*
  • Private Donor
  • Joel Currie*
  • Dee Ann Demars
  • Kurt Devos*
  • Private Donor
  • Deborah Dipiero
  • Margaret Dunlap*
  • Private Donor
  • Private Donor
  • Chris Favret Family
  • Private Donor
  • Rachel Folger*
  • David Fowler*
  • Michael Friedman
  • Alonzo Fulgham
  • Andrew Gaskill*
  • Derek Gianino
  • Melba Good*
  • Emma Griffith*
  • Prescott Griffith
  • Private Donor
  • Christa Heibel
  • Janis Holliday*
  • Rick Hutcheson
  • Holly Jones*
  • Sarah Kline
  • Mary Knepshield
  • Ron Kollen
  • Drishintha Kurera*
  • Diana Labra-Cruz
  • Salvatore Lamantia
  • Bernadette Lawrence
  • Catharina Lee
  • Tracy Lewis
  • Private Donor
  • Donna LoMonaco
  • Private Donor*
  • Ryan Mattson
  • Robert Manley
  • Private Donor
  • Private Donor
  • Sophie Masterton
  • Theo Mattijssen Consultancy
  • James McKenna
  • Private Donor
  • Tula Misiano
  • Philip Nelson
  • Sean Noble
  • Timothy O’Brien
  • Anthony Padovano
  • Dominick Padovano
  • Glenn Pahnke
  • Bev and Glen Parker
  • Paula Pasquarello
  • PayPal Giving Fund Anonymous
  • Harlon Pickett
  • Kaelyn Rittle
  • Private Donor
  • Jennifer Rocha
  • Jose Rodriguez
  • Florence Roisman
  • Private Donor
  • Private Donor
  • Dan Schwartz
  • Robyn Schwartz
  • William Senn
  • Dong Shen
  • Robert Sherwood
  • Ruth Ann Subach
  • Joshua Tam
  • Christine Tom*
  • Eric Traub
  • Centella Tucker
  • Laura Ulmer Matrka
  • Jasper Vale
  • Erin Weir*
  • Bobbie Wesley
  • Alex Wong
  • Private Donor
  • Jamie Zembruski

$101-$249 – Brings relief through vital programs, education, and patient services

  • Nasser Alhanayaa
  • Laura Arth
  • Rocco Baldelli
  • Flavia Barros
  • Rebekah Berry
  • Briannan Buchta
  • Private Donor
  • Private Donor
  • Martha Cruz
  • Joel Currie
  • Private Donor
  • Rachel Duffie
  • Private Donor
  • Facebook Anonymous
  • Leonie Feinstein
  • PSL FFL
  • Gregory Giofu*
  • Private Donor
  • Private Donor
  • Adam & Julie Grumet
  • Kevin Hannigan
  • Jason Hanson
  • Emma Hornby*
  • Sandra Hough
  • Private Donor
  • Private Donor
  • Private Donor
  • Patricia Iannuzzi
  • David Jiang
  • Shane Jiang
  • Laura Johnson
  • Private Donor
  • Private Donor
  • Raymond Krupka*
  • Lynda Krupka
  • Richard Lamain*
  • Private Donor
  • Chuck Manley*
  • Lisa Mayo-Smith*
  • Michael McCullough
  • Donna & James McFadzean
  • Private Donor
  • Manon Moeyens
  • Kelly Nelson
  • Private Donor
  • Rutu Patel
  • Joni Patzer*
  • Kirk Patzer*
  • Private Donor*
  • Private Donor
  • James Rittle
  • Jacqui Russell*
  • Judith Smith
  • Jordan Tama
  • Dianna Taylor
  • Private Donor
  • Satyavardhan Vancha
  • Paul Villar
  • Yihan Wang
  • Erika Wilhelm*
  • Private Donor

Up to $100 – Provides comfort and connection – the first step toward easing the burden of PC/PPK

  • Don & Saundra Aker, Sharon & Lee Nelson, Greg Ford
  • John Anderson
  • Private Donor
  • Cynthia Arhar
  • Keith Ashworth
  • Private Donor
  • Miranda Augustin
  • Claudia Avella-Garcia
  • Susan Baker
  • J Baker
  • Jeffrey Baker
  • Private Donor
  • Kathleen Barletta
  • Nancy Barratt
  • Annamarie Baumler
  • Diane Bell
  • Harold Berrian
  • Rose Beyer
  • Private Donor
  • Private Donor
  • Susan Block
  • Susan Boiko
  • Private Donor
  • Private Donor
  • Mason Booms
  • Julie Boorer
  • Private Donor
  • Delphine Boye
  • Stacey Bradford
  • Kathleen Bravo
  • Private Donor
  • Private Donor
  • Joshua Brunz
  • Kelly Burkhardt
  • Private Donor
  • Private Donor
  • Jadey Chan
  • Mary Chassels
  • Rebecca Chenault
  • Private Donor
  • Private Donor
  • Private Donor
  • Donna Christensen
  • Fran Christian
  • Doug Cleland
  • Ann Clemens
  • Dean & Shelli Clemens
  • Roderick Coe
  • Private Donor
  • Chuck Cooper
  • Private Donor
  • Gina Defebaugh
  • Private Donor
  • Blake Despain
  • Private Donor
  • Private Donor
  • Alexa DiPiero
  • Diandra DiPiero
  • Anita Doda
  • Carole Domogala
  • Jay & Sue Duley
  • Jonathan Dyer
  • John Edminister
  • Sharon Enoch
  • Stephanie Enoch
  • John Erwin
  • Private Donor
  • Private Donor
  • Wanda Fogelman
  • Private Donor
  • Susan Friedman
  • Marie Fürsten
  • Lisa Gable
  • Samantha Garcia
  • Charles Gately
  • Olive, Luc and Sam Gaubert
  • Private Donor
  • Private Donor
  • Private Donor
  • Mitch Green
  • Sherrie Groff
  • Andre Gronmeyer
  • Debraj Guhabiswas
  • Christopher Gulli
  • Amy Hackett
  • Roberta Hantman
  • Joshua Harris
  • Peter Harris
  • Mike Harvatis
  • Jennifer Hassab
  • Darlene Hassinger
  • Karen Hayden
  • Private Donor
  • Private Donor
  • Private Donor*
  • Stuart Hickman
  • Shing Yan Ho
  • Michael Hodge
  • Shari and Taylor Hodges
  • Nina and Jeff Holachek
  • Victoria Van Horn
  • Private Donor
  • Thomas Humphreys
  • Private Donor
  • Lauren Isbell*
  • Arfin Jahangir
  • Private Donor
  • Margaret Jordan
  • Michael Justice
  • Simona Jusyte
  • Nihlal Kaplan
  • Ian Katz
  • Private Donor
  • Grzegorz Klimkiewicz
  • Marc Korman
  • Scott Kravitz
  • Julie Krohmer
  • Diane Berrian Kuc
  • Malkanthi Kurera*
  • Private Donor
  • Heidi Lakenan
  • Dana Lane
  • Private Donor
  • Heather Lauer
  • Private Donor
  • Bruce Lee
  • Charlotte Legros
  • Sonja Lehmann
  • Isaiah Leung
  • Dorothy Levin
  • Xiaoe Li
  • Merlene Sanders Lindow
  • Ka Ling Lim
  • Alison Long-Szeto
  • Tyler Luethje
  • Vicky Ly
  • Alice Maan
  • Gary Malaschak
  • Private Donor
  • Christine Marchini
  • Meyer Markowich
  • Private Donor
  • Bernadette Maurone
  • Tricia McCain
  • William McCart
  • Kevin McCarthy
  • William & Katherine McClennen
  • Aleesha McCormick
  • Private Donor
  • John McGrath
  • Karen McGuire
  • Paula Meadowcroft
  • Wolfram & Margitta Michel
  • Private Donor
  • John Miller
  • Cheryl Milnazik
  • Bonnie Moatz
  • Laura Moberly
  • Private Donor
  • Hina Naela
  • Suzanne Nagami
  • Susan K Navarra
  • Gary Nelson
  • Lee Nelson
  • Private Donor
  • Heather Nelson
  • Sheri and Steve Nelson
  • John Novak
  • Megan O’Callaghan
  • Private Donor
  • Kimberly Oliver
  • Deborah Oliver-Davis
  • Phyllis O’Neill
  • Zachary Padovano
  • Nicole Pasquarello
  • Philip Pasquarello
  • Kathy Paulson
  • Private Donor
  • Susan Pearson
  • Julie Peconi*
  • Private Donor
  • Bethany Perez-White
  • Darlene Perry
  • Amy Peterson
  • Pete Pfeiffer
  • Private Donor
  • Kathy Pilcher
  • Private Donor
  • Mike & Linda Pupo
  • John Purcell
  • Private Donor
  • Edward Pyner*
  • Private Donor
  • Private Donor
  • JoEllen Ross-Hauer
  • Private Donor
  • Private Donor
  • Anna Ryder
  • Catherine Santos
  • Elissa Scannell
  • Donna Schanne
  • Maggie Schanne
  • Curtis Schmitt
  • Erika Schwartz
  • Private Donor
  • Howard Sckolnik
  • Ann Shade
  • Private Donor*
  • Braham Shroot
  • Connie Shrum
  • Susan Simpson
  • Cory Simpson
  • Private Donor
  • Jane Skaggs
  • Carol Skamser
  • Private Donor
  • Marilyn Smith
  • Shannon Snow
  • Leena Soininen
  • Shelley & Erich Sontag
  • Stephen & Melissa Soondar
  • Private Donor
  • Private Donor
  • Carolyn Stamper
  • Private Donor
  • Mike Stoner
  • Private Donor
  • Joanne Tang
  • Matthew Tanz
  • Kelly Tedeschi
  • Joyce Teng
  • Aaron Thompson
  • Stefanie Thompson
  • Samantha Timlick
  • Private Donor
  • Douglas Tucker
  • Simon Tucker*
  • Graham Tutt
  • Lex Udy
  • Private Donor
  • Maria Laura Valencia
  • Consuelo Valencia
  • Elise Van der Laan
  • Private Donor
  • Lani Wageman
  • Mary Wagner
  • MaryBeth Wagner
  • Laura Ward
  • Gail & Seth Warner
  • Ryan Webb
  • Kathleen Wencl
  • Milan Westenskow
  • Hannah Whitehead
  • Angela Williamson
  • Rosetta Williams
  • Private Donor
  • Private Donor
  • Marcel Willner
  • Private Donor
  • Annette Wilson
  • Kathy Van Winkle
  • Ashley Wittmer
  • Stephen Wittmer
  • Private Donor
  • Catherine Wolff
  • Stacy & Doug Wolinski
  • David, Esther & Mandy Eng-Wong
  • Kathleen Yackin
  • Steve Yackin
  • Private Donor
  • Alexandra Yeung
  • Charles Yi
  • Christine Young
  • Private Donor

Monthly donors are those who provide consistent, sustaining support that powers progress year-round. These givers also have an *asterisks by their names in the tiers above. They create a steady relief circle for all those in our registry who are suffering with PC and other types of painful palmoplantar keratoderma.

  • Private Donor
  • Private Donor
  • Helaine Alessio
  • James Andrade
  • Tom Baker
  • Julianne Bennett
  • Matthew Block
  • Kim Burr
  • Olivia Castro Lay
  • Private Donor
  • Joel Currie
  • Kurt Devos
  • Margaret Dunlap
  • Barbara Feinstein
  • Rachel Folger
  • David Fowler
  • Philip Gard
  • Andrew Gaskill
  • Gregory Giofu
  • Melba Good
  • Emma Griffith
  • Private Donor
  • Janis Holliday
  • Emma Hornby
  • Marcia Hough Baker
  • Lauren Isbell
  • Holly Jones
  • Private Donor
  • Aaron Klein
  • Raymond Krupka
  • Malkanthi Kurera
  • Drish Kurera
  • Richard Lamain
  • Private Donor
  • Chuck Manley
  • Lisa Mayo-Smith
  • Private Donor
  • Jack Padovano
  • Joni Patzer
  • Kirk Patzer
  • Julie Peconi
  • Private Donor
  • Edward Pyner
  • Jacqui Russell
  • Private Donor
  • Private Donor
  • Christine Tom
  • Simon Tucker
  • Erin Weir
  • Erika Wilhelm

To everyone who supported PC Project in 2025: thank you. Your generosity fuels research, supports families, and moves us closer to real treatments.

Behind every grant funded, every patient supported, and every milestone reached is a community that believes this work matters. We are deeply grateful.

If you’d like to continue supporting this mission, please consider donating or joining our Steady Relief Circle with a monthly gift.

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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