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Pachyonychia Congenitia Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

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The IPCC Journey

In 2004, Sancy Leachman, MD, PhD, had the brilliant idea for PC Project to invite the best and brightest minds to Park City, Utah to explore ways to find a cure for Pachyonychia Congenita (PC). At that pivotal meeting, on the ski slopes and in a conference room, the International Pachyonychia Congenita Consortium (IPCC) was formed by experts, many who are still involved today.

2004 IPCC Symposium, Park City, Utah USA

IPCC Meetings

IPCC welcomes all scientists and physicians interested in collaborative efforts to develop and deliver effective treatments for PC and related disorders. We are so grateful for the experts working closely with us — without the support and direction of the IPCC members, we would make no progress. We invite you to participate in this unique…

Continue Reading IPCC Meetings

IPCC: A Highlight of the First 12 Years

You can view the larger image file here.

IPCC Newsletters Archive 2004-2022

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

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