This section (formally called the PC Wiki) is constantly being updated and features information from patients with comments from PC physicians and scientists and includes tips, direct links to products and vendors. To make the tips most useful, we identify each patient contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). Choice of care techniques and products will vary depending on the specific type of PC, the gene and mutation, and even personal preferences. And remember with PC, what works for one patient may not work for another!
Check back frequently for new information and new pages. Information is gathered from patient meetings, patient emails, our private online patient forum, PC physicians, and more. Our goal is to provide a central place where PC patients can find tips and information from other patients and where patients can share what works best for them.
NOTE: If you have any comments, products, tips, or tools that you would like to share, please email them to us at firstname.lastname@example.org.
One of the challenges with PC is its veritable nature and each person is unique, even those with the same mutation. Please remember just because something works for one PC patient, it may not work for another. You will have to find out what works best for you. Please discuss any care tips or treatments with your local doctor. This section is not a substitute for medical advice from a doctor.