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Pachyonychia Congenitia Project

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PC Town Hall Meeting

March 7, 2022 by Pachyonychia

5 April 2022 – PC Town Hall 

The third PC Town hall meeting was held Tuesday, April 5, 2022 at 6:00pm MT (8:00pm ET). The meeting included an update from PC Project and an information session on the VAPAUS Clinical Trial for PC with special guests Drs. Kempers and Hansen.

Second PC Town Hall 

The second PC town hall meeting was held Friday, November 20, 2020 at 11:00am MT. The meeting had an update on PC Project’s activities during the pandemic, messages from select PC Project’s Board of Trustee members, and #Worst2First4PC discussion. Below is a recording of the meeting.

First PC Town Hall 

The first PC town hall meeting was held Thursday, March 19, 2020 at 6:30pm MT. The meeting had an overview about PC, PC Project, the burden of living with PC, and share some of the exciting developments that have been happening, i.e. the VALO trial, current research efforts, etc. Below is a recording of the meeting.

Filed Under: Events

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

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