Pachyonychia Congenita Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

Donate

Video Library

We hope these videos will help PCers know they are not alone – there is a thriving PC community!

Because PC is rare, many PCers never meet another PC patient (other than a family member) until they join our patient registry. These videos reflect just some of the work we do in our community as patients, physicians, researchers, and other supporters.

Please watch, like, and share these videos to help the world know more about PC and what we are accomplishing.

Visit & Subscribe to our YouTube Channel for more videos

The following videos and presentations are divided into four sections: 1) Meeting Presentations, 2) Interviews & Other, 3) Caring For PC, and 4) Events. 

Meeting Presentations

El-PFDD Meeting with FDA
PC Project & FDA
2018
DNA & RNA
Robyn Hickerson, PhD
2009
Why is Pain important?
Barbara Hoggart, MD
2011
What is PC?
Peter Hull, MD
2011
PC Phenotype Part 1
PC Staff
2004
Question & Answer Part 3
PC Staff
2004
Living With Pain
Mark Eliason, MD
2009
Inherited Nail Disorders
Eli Sprecher
Aug 2012
What is the worst thing about PC?
PCers
2018
First PC Town Hall Meeting
Mar 2020
Third PC Town Hall Meeting
April 2022
New Orleans PC Patient Support Meeting Slideshow
March 2023
Becoming an Informed Partner
C. David Hansen, MD
2011
PC Science & Research
Roger Kaspar, PhD
2009
What is PC?
Frances Smith, PhD
2011
What is PC?
Sancy Leachman, MD
2009
PC Genotype Part 2
PC Staff
2004
PC Genetics
Frances Smith, PhD
2011
The World of Keratins
Gabriele Richard
2011
siRNA Clinical Trial
Janice Schwartz
2008
Boston PC Patient Support Meeting Slide Show
2019
Second PC Town Hall Meeting
Nov 2020
Palmoplantar Keratodermas Clinical Diagnosis and a therapeutic Challenge
July 2022
Edel O’Toole
Parenting Strategies for parents of children with Pachyonychia Congenita
Feb 2025

Interviews & Other

Impact of Skin Diseases 2 – CSD
Janice Schwartz
Aug 2023
20 Years Strong & Tribute to Janice
Roseann McGrath
March 2023
Why I Volunteer
Jack Padovano
2023
What is PC Project?
PC Staff
2015
Dawn to Dusk
Irwin McLean, PhD
2008
My Great Biopsy Movie
TransDerm
2009
PC Radio Interview
Mary Schwartz
2012
C Fitness Video 2.o
by Erika Wilhelm
2019
¿Qué es la Paquioniquia?
Jenny y Alex Flores explican lo que es la Paquioniquia congénita
2023
Happy 20 Years PC Project & Tribute to Executive Director, Janice Schwartz
Jack Padovano
March 2023
Why I Support PC Project
James Rittle
2023
PC Project – Healthline
PC Staff
2012
Edinburgh PSM Video 
PC Staff
2006-2014
Radio coverage for PC Project Press Conference 
at TransDerm
2012
French Interview Living with PC 
Sylvie Le Coeur Au Pied
2010
PC Exercise Video
Helaine Alessio, PhD
2009
Paquioniquia Congénita
by Jeniffer
2023
Rare Disease Day Live 2024
Janice & Kara
Feb 29, 2024

Caring for PC

Caring for PC – Keratoderma
PC Staff
2009
Care for PC Part 4
PC Staff
2004
Caring for PC French Version – Keratodermine
2009
Caring for PC – Nails
PC Staff
2009
Nail Infections
Christopher Urban, MD
2011
Caring for PC French Version – Ongles de PC
2009

 Events

PC Golf Tournament 
PC Staff and more
2013
ThickSkin Duathlon
Transderm
2012
Thank you, Jerry!
PCers & PC Staff
2016
ThickSkin Duathlon 
TransDerm
2013