Video Library

We hope these videos will help PCers know they are not alone – there is a thriving PC community!

Because PC is rare, many PCers don’t meet another PC patient (other than a family member) until they join our patient registry. These videos reflect just some of the work we do in our community as patients, physicians, researchers, and other supporters. Please watch, like, and share these videos to help the world know more about PC and what we are accomplishing.

The videos and presentations are divided into four sections: 1) Meeting Presentations, 2) Interviews & Other, 3) Caring For PC, and 4) Events.

Meeting Presentations

El-PFDD Meeting with FDA
PC Project & FDA
2018

DNA & RNA
Robyn Hickerson, PhD
2009

Why is Pain important?
Barbara Hoggart, MD
2011

What is PC?
Peter Hull, MD
2011

PC Phenotype Part 1
PC Staff
2004

Question & Answer Part 3
PC Staff
2004

Living With Pain
Mark Eliason, MD
2009

Inherited Nail Disorders
Eli Sprecher
Aug 2012

What is the worst thing about PC?
PCers
2018

First PC Town Hall Meeting
Mar 2020

Third PC Town Hall Meeting
April 2022

New Orleans PC Patient Support Meeting Slideshow
March 2023

Becoming an Informed Partner
C. David Hansen, MD
2011

PC Science & Research
Roger Kaspar, PhD
2009

What is PC?
Frances Smith, PhD
2011

What is PC?
Sancy Leachman, MD
2009

PC Genotype Part 2
PC Staff
2004

PC Genetics
Frances Smith, PhD
2011

The World of Keratins
Gabriele Richard
2011

siRNA Clinical Trial
Janice Schwartz
2008

Boston PC Patient Support Meeting Slide Show
2019

Second PC Town Hall Meeting
Nov 2020

Palmoplantar Keratodermas Clinical Diagnosis and a therapeutic Challenge
July 2022
Edel O’Toole

Interviews & Other

Impact of Skin Diseases 2 – CSD
Janice Schwartz
Aug 2023

20 Years Strong & Tribute to Janice
Roseann McGrath
March 2023

Why I Volunteer
Jack Padovano
2023

What is PC Project?
PC Staff
2015

Dawn to Dusk
Irwin McLean, PhD
2008

My Great Biopsy Movie
TransDerm
2009

PC Radio Interview
Mary Schwartz
2012

C Fitness Video 2.o
by Erika Wilhelm
2019

¿Qué es la Paquioniquia?
Jenny y Alex Flores explican lo que es la Paquioniquia congénita
2023

Happy 20 Years PC Project & Tribute to Executive Director, Janice Schwartz
Jack Padovano
March 2023

Why I Support PC Project
James Rittle
2023

PC Project – Healthline
PC Staff
2012

Edinburgh PSM Video
PC Staff
2006-2014

Radio coverage for PC Project Press Conference
at TransDerm
2012

French Interview Living with PC
Sylvie Le Coeur Au Pied
2010

PC Exercise Video
Helaine Alessio, PhD
2009

Paquioniquia Congénita
by Jeniffer
2023

Caring for PC

Caring for PC – Keratoderma
PC Staff
2009

Care for PC Part 4
PC Staff
2004

Caring for PC French Version – Keratodermine
2009

Caring for PC – Nails
PC Staff
2009

Nail Infections
Christopher Urban, MD
2011

Caring for PC French Version – Ongles de PC
2009

Events

PC Golf Tournament
PC Staff and more
2013

ThickSkin Duathlon
Transderm
2012

Thank you, Jerry!
PCers & PC Staff
2016

ThickSkin Duathlon
TransDerm
2013