Videos and Presentations
Because PC is so rare, many PCers don’t meet another PC patient (other than a family member) until they join PC Project. We hope these videos will help PCers know they are not alone — there is a PC community. Together, patients and researchers will make a difference. Please watch, like, and share these videos to help the world know more about PC and what we are doing.
The videos and presentations are divided into four sections: Meeting Presentations, Interviews & Other, Caring For PC, and Events. There is an alphabetical list by topic on the right side of the page. There are two options for viewing (1) CLICK the name link in the upper left to watch the video in YouTube. (2) CLICK on the image to start the video playing in the small window screen, then click FULL SCREEN in the bottom right hand corner.
Meeting Presentations
| El-PFDD Meeting with FDA PC Project & FDA 2018 |
Becoming an Informed Partner C. David Hansen, MD 2011 |
DNA & RNA Robyn Hickerson, PhD 2009 |
PC Science & Research Roger Kaspar, PhD 2009 |
| Why is Pain important? Barbara Hoggart, MD 2011 |
What is PC? Frances Smith, PhD 2011 |
What is PC? Peter Hull, MD 2011 |
What is PC? Sancy Leachman, MD 2009 |
| PC Phenotype Part 1 PC Staff 2004 |
PC Genotype Part 2 PC Staff 2004 |
Question & Answer Part 3 PC Staff 2004 |
PC Genetics Frances Smith, PhD 2011 |
| Living With Pain Mark Eliason, MD 2009 |
The World of Keratins Gabriele Richard 2011 |
Inherited Nail Disorders Eli Sprecher Aug 2012 |
siRNA Clinical Trial Janice Schwartz 2008 |
| What is the worst thing about PC? PCers 2018 |
Boston PC Patient Support Meeting Slide Show 2019 |
First PC Town Hall Meeting Mar 2020 |
Second PC Town Hall Meeting Nov 2020 |
| Third PC Town Hall Meeting April 2022 |
Palmoplantar Keratodermas Clinical Diagnosis and a therapeutic Challenge July 2022 Edel O’Toole |
Interviews & Other
| PeDRA Community Spotlight Janice Schwartz 2021 |
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| What is PC Project? PC Staff 2015 downloadable copy |
FasterCures Time=Lives Mary Schwartz 2012 |
PC Project – Healthline PC Staff 2012 |
Embarrassing Bodies UK UK Channel 4 2012 |
| Dawn to Dusk Irwin McLean, PhD 2008 |
Edinburgh PSM Video PC Staff 2006-2014 |
My Great Biopsy Movie TransDerm 2009 |
Radio coverage fo PC Project Press Conference at TransDerm 2012 MP3 file |
| PC Radio Interview Mary Schwartz 2012 MP3 file |
French Interview Living with PC – Sylvie Le Coeur Au Pied 2010 |
PC Fitness Video 2.o by Erika Wilhelm 2019 |
PC Exercise Video Helaine Alessio, PhD 2009 Core Training Intro pdf |
Caring For PC
| Caring for PC – Keratoderma PC Staff 2009 |
Caring for PC – Nails PC Staff 2009 |
Care for PC Part 4 PC Staff 2004 |
Nail Infection Christopher Urban, MD 2011 |
| Caring for PC French Version – Keratodermine 2009 |
Caring for PC French Version – Ongles de PC 2009 |
Events
| Thank you, Jerry! PCers & PC Staff 2016 |
PC Golf Tournament PC Staff 2013 |
ThickSkin Duathlon TransDerm 2013 |
ThickSkin Duathlon TransDerm 2012 |
