Videos and Presentations

Because PC is so rare, many PCers don’t meet another PC patient (other than a family member) until they join PC Project. We hope these videos will help PCers know they are not alone — there is a PC community. Together, patients and researchers will make a difference. Please watch, like, and share these videos to help the world know more about PC and what we are doing.

The videos and presentations are divided into four sections: Meeting Presentations, Interviews & Other, Caring For PC, and Events. There is an alphabetical list by topic on the right side of the page. There are two options for viewing (1) CLICK the name link in the upper left to watch the video in YouTube. (2) CLICK on the image to start the video playing in the small window screen, then click FULL SCREEN in the bottom right hand corner.

Meeting Presentations

El-PFDD Meeting with FDA
PC Project & FDA
2018
Becoming an Informed Partner
C. David Hansen, MD
2011
DNA & RNA
Robyn Hickerson, PhD
2009
PC Science & Research
Roger Kaspar, PhD
2009
Why is Pain important?
Barbara Hoggart, MD
2011
What is PC?
Frances Smith, PhD
2011
What is PC?
Peter Hull, MD
2011
What is PC?
Sancy Leachman, MD
2009
PC Phenotype Part 1
PC Staff
2004
PC Genotype Part 2
PC Staff
2004
Question & Answer Part 3
PC Staff
2004
PC Genetics
Frances Smith, PhD
2011
Living With Pain
Mark Eliason, MD
2009
The World of Keratins
Gabriele Richard
2011
Inherited Nail Disorders
Eli Sprecher
Aug 2012
siRNA Clinical Trial
Janice Schwartz
2008
 
What is the worst thing about PC?
PCers
2018
Boston PC Patient Support Meeting Slide Show
2019
First PC Town Hall Meeting
Mar 2020
 

Interviews & Other

     
      PeDRA Community Spotlight
Janice Schwartz
2021
What is PC Project?
PC Staff
2015
downloadable copy
FasterCures Time=Lives
Mary Schwartz
2012
PC Project – Healthline
PC Staff
2012
Embarrassing Bodies UK
UK Channel 4
2012
Dawn to Dusk
Irwin McLean, PhD
2008
Edinburgh PSM Video 
PC Staff
2006-2014
My Great Biopsy Movie
TransDerm
2009
Radio coverage fo PC Project Press Conference at TransDerm
2012
MP3 file
PC Radio Interview
Mary Schwartz
2012

MP3 file
French Interview Living with PC – Sylvie
Le Coeur Au Pied
2010
PC Fitness Video 2.o
by Erika Wilhelm
2019
PC Exercise Video
Helaine Alessio, PhD
2009
Core Training Intro pdf

Caring For PC

Caring for PC – Keratoderma
PC Staff
2009
Caring for PC – Nails
PC Staff
2009
Care for PC Part 4
PC Staff
2004
Nail Infection
Christopher Urban, MD
2011
   
Caring for PC French Version – Keratodermine
2009
Caring for PC French Version – Ongles de PC
2009
   

 Events

Thank you, Jerry!
PCers & PC Staff
2016
PC Golf Tournament 
PC Staff
2013
ThickSkin Duathlon 
TransDerm
2013
ThickSkin Duathlon 
TransDerm
2012

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
 
sb_featlink_patientstories
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC