IPCRR Patient Registry Data

IPCRR Patient Registry Data

Patients in the IPCRR are helping physicians and scientists discover more about PC. This research is leading to the develoopment of treatments for PC. Data from the IPCRR patient registry is available on the PC Data tab including the location of PC patients by country and state, listings of all of the genes and mutations linked to Pachyonychia Congenita, a summary of the registry data and other helpful charts and graphs.