MEMBERSHIP ORGANIZATIONS

MEMBERSHIP ORGANIZATIONS

PC Project is a member of several national organizations and participates regularly in efforts sponsored by these groups.

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Coalition of Skin Diseases
 
(focus on skin disorders)

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Genetic Alliance

(focus on genetic disorders)

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Global Genes
(focus on rare genetic disorders)

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National Organization of Rare Diseases (NORD)

(focus on rare disorders)

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
 
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PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC