Registry forms available online
The registry forms are available online.
for both new registrations and to update your data. Your participation really matters!
- Log in or register to fill out the online questionnaire and consent form.
- Provide the photos.
- Connect with PC Project.
- If referred for genetic testing, you will receive a sample collection kit for saliva collection and free genetic testing (a $2500 value).
“I felt so alone, and different for so long, it’s a multitude of emotions when I read posts from other PCers. It’s like I’m not alone anymore, and I feel less like a medical mystery/outcast. And being able to say with 100% certainty what I have is amazing.”
“The PC registry gave me the answer to why my feet were not like other people’s. It wasn’t wearing the wrong shoes as a child. It is a genetic condition and being registered by the PC Project gives answers and support when talking to our doctors and others around us about PC.”
“It gave my disease a name! It gives me a place to go to for support.”