Select List of Research Articles

Select List of Research Articles

To make the most current and correct articles easily available, we have created these Select Lists.

Each list contains direct links to the full text articles.

There are many publications with out-of-date or incorrect information about Pachyonychia Congenita especially articles without genetic testing data. We urge authors to cite articles which include diagnositc confirmation through genetic testing (available free through PC Project.)


Short pamphlets provide basic information on PC that can be used for patients, schools, employers, friends, donors and medical professionals. Feel free to print and use the pamphlets or article lists above.

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC