March 15-17, 2023
Hilton Garden Inn New Orleans Convention Center
PC patients and their loved ones, along with PC scientists and doctors gathered for the first in person Patient Support Meeting since 2019. (Our last scheduled meeting was cancelled in 2020 due to Covid-19.)
Our meeting theme was “Lucky Us!” Living with PC may not feel very lucky, especially when days are filled with pain, limitations, misunderstanding, and even embarrassment. But this year, and partly because our Patient Support Meeting overlapped with St. Patrick’s Day, we chose to focus on how truly “lucky” we are.
Do you know the leaves on a four leaf clover stand for love, hope, faith and luck? In the PC community, we have an abundance of hope, faith, and especially love. And we absolutely believe in the saying, “The harder you work, the more luck you have!”
What’s more, there are 10,000 three leaf clovers for every 1 four leaf clover, which is why they are so rare—and so valued. So for the days of the patient support meeting, we enjoyed being with a gathering of rare people who are like those four-leaf clovers— cherished and valued. We also encouraged our community to recognize the dedicated efforts of people working on our behalf to bring us luck.
Most of all, we invited all in attendance to experience the faith, hope, and love that exists in our amazing, supportive PC family so we could see how truly lucky we are!
We had 111 attendees (from AL, AR, CA, CO, Canada, England, FL, France, GA, IL, IN, Ireland, Israel, LA, Mexico, MN, NC, NM, NY, OH, OR, PA, Puerto Rico, RI, TN, TX, UT, WA, WI) which included 48 PCers.
This meeting was co-sponsored by PC Project and Palvella Therapeutics.