2023 New Orleans Patient Support Meeting

March 15-17, 2023
Hilton Garden Inn New Orleans Convention Center

1001 S. Peters Street, New Orleans, LA 70130, USA


  • Wednesday, March 15
    • Check in 5:00-6:00pm
    • Welcome dinner 6:00pm
    • Introductions
  • Thursday, March 16
    • Breakfast 7:30-8:50am
    • Morning session 9:00am-12:00pm
    • Lunch 12:00pm-1:30pm
    • Afternoon session 1:30-4:15pm
    • Dinner 6:00pm
  • Friday, March 17
    • Breakfast 7:30-8:50 am
    • Morning session 9:00am-12:15pm
    • Closing Lunch 12:15pm

Coinciding with the main meeting sessions will be a program for children with and without PC.

We are thrilled to announce some of the PC experts who will be at part or all of our meeting:

C. David Hansen, MD; Robyn Hickerson, PhD; Alain Hovnanian, MD, PhD; Sancy Leachman, MD, PhD, Amy Paller, MD; Michael Conneely, PhD; Joyce Teng, MD; Edel O’Toole, MD, PhD, and Eli Sprecher, MD, PhD.

Because our meeting is right before a large dermatology conference, we are able to have an amazing line up of our international PC researchers and doctors with us to give presentations and answer your questions about PC. They are literally the world’s experts in our condition!

If you are interested in attending, please do the following:


Please register as soon as possible so we can finalize meeting plans. There is no cost to initially register. Fees are paid separately and reduced fees apply until January 17, 2023. Registration and hotel reservations must be completed and fees must be paid by February 13, 2023 Click here to register for the 2023 New Orleans PC PSM.


Update: The link is no longer live as the deadline has passed. If you need hotel assistance, please contact us at info@pachyonychia.org

Reserve your hotel room online. The meeting discounted room rates per night are 1 king bed $199/night or 2 queen beds $219/night for Wednesday and Thursday night. Because of the large dermatology meeting that starts Friday, any extra nights for the weekend are available at 1 king bed $259/night or 2 queen beds $279/night. Please book now as the hotel will release our block of rooms after February 13. There is a credit card required for reservations but you will not be charged until the time of your stay. There is no cancellation fee if you cancel 4 days ahead of arrival. Click here to reserve your hotel room at the Hilton Garden Inn New Orleans Convention Center.

NOTE: If you are driving a vehicle, the hotel only has valet parking at $45/night. There is a self-parking garage located across the street from the hotel. Rates vary based on demand, but it normally costs $25/day to find self-parking.


Meeting fees are waived for PC patients attending a PC Patient Support Meeting for the first time and one accompanying person.

Pay after January 17, 2023: $190/person 15 years or older; $100/child age 2-15.
Children under two are free.
All fees must be paid by February 13, 2023.

PC Project pays most of the meeting costs which includes the meeting room, equipment rental fees, programming, and food including Wednesday dinner, Thursday breakfast, lunch and dinner and Saturday breakfast and lunch as well as breaks and any meeting supplies. Click to pay your meeting fees by donating the total amount to PC Project and select the cause Patient Support Meeting.


After you have registered for the meeting and have made your hotel reservation, if attending will be a financial burden, you can apply for a scholarship to cover meeting fees, the travel, and/or hotel costs. The number of scholarship awards will depend on available funds.

Scholarship Application Deadline is December 31st, 2022 and awards will be announced by January 6th, 2023. Click here to apply for a PC Patient Support Meeting Scholarship.

UPDATED NOTE: If you missed the deadline and still want us to consider you for assistance getting to and/or attending the meeting, please fill out the application anyway. Thanks to some generous donors, we have some additional funding for scholarships!


If you would like to sponsor the meeting or help another person with PC attend the PSM, please contact PC Project at info@pachyonychia.org or make an additional donation.

If you need assistance in completing the forms or if you have any questions, please contact: Pachyonychia Congenita Project, PO Box 17850, Holladay, UT 84117 USA
Phone: (+1) 801-987-8758 Email: info@pachyonychia.org

This special patient meeting is co-sponsored by our partner, Palvella Therapeutics.

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